mesothelioma

Should a Patient Pay Cash for an Unapproved Treatment

These are desperate times and I often get asked the question “should I pay for a treatment that my insurance company is denying”?  This often becomes an option after a patient has received standard therapy and possibly one or more clinical trials.  Often a physician has a hunch that a particular drug might have activity in mesothelioma, […]


The Power of Community

Reading the recent postings, I was struck anew by the sheer power of a force that has never stopped astonishing me since the day of my diagnosis, over 6 years ago. I’m referring to the power of community, and nowhere is everything that term implies more amply demonstrated than here.
I’ve frequently mentioned how, as a nurse, […]


Second line Therapy

Following treatment with Alimta and Cisplatin you may have a respite period until your tumor begins to once again become active.  This is the time to explore second line therapy.  There are many drugs and combinations of drugs that have demonstrated some activity in mesothelioma but have not been studied in large enough numbers to get FDA […]


Hospice Care

Choosing hospice care does not mean that one is giving up on life but rather choosing to  end treatments aimed at attempting to cure the disease or condition and elects treatment that eases pain and discomfort Hospice services are available once a patient is thought to be in the final 6 months of life. Hospice nurses receive […]


Pain Talk

One topic that pops up consistently in the meso community is how to manage pain.  I’m not surprised, as this is generally the chief concern of all patients faced with major diseases and their treatment.
Way back when I started in Nursing, decades ago, there were very few options for controlling pain. A patient who complained of pain […]