Mesothelioma Foundation Expert Can Answer Your Questions!
Nurse Practitioner, Mary Hesdorffer, is a mesothelioma expert and has worked with mesothelioma patients and their families for the past twelve years. Mary is available to answer your questions about mesothelioma, its symptoms and treatments as well as options available to you. This help is a free service provided by the Mesothelioma Applied Research Foundation. We are not a law firm. Read more about the Mesothelioma Applied Research Foundation.
TO GET HELP CALL: (877) End-Meso or (877) 363-6376 or fill out the form to the right to be contacted by her.
On Thursday, May 14 at 8PM ET, the Meso Foundation will interview Drs. Evan Alley and Charles Simone of Penn Medicine during a new installment of the Meet the Mesothelioma Experts live teleconference series. The interview will be led by the Meso Foundation’s executive director and expert mesothelioma nurse practitioner Mary Hesdorffer.
This session, titled Focus on Mesothelioma Centers of Excellence: Penn Medicine, is the second installment in a series of interviews highlighting mesothelioma centers of excellence.
The session will be available live on Thursday, May 14 at 8PM ET by dialing into the conference call. The session is available at no charge, but those interested in participating must RSVP ahead of time in order to receive the call-in number. Please RSVP at curemeso.org/experts.
Drs. Alley and Simone are the co-directors of the Penn Mesothelioma and Pleural Program. Dr. Alley is a medical oncologist and is the leading investigator in the PD-1 inhibitor trial that has recently made big news in mesothelioma. Read more about the trial here.
Dr. Simone treats patients with malignant pleural mesothelioma with photon and proton radiation therapy and photodynamic therapy (PDT). He is a National Institutes of Health and Department of Defense funded investigator who performs clinical and translational research investigating the novel use of proton therapy and PDT as definitive therapy and as part of multi-modality therapy for mesothelioma.
To RSVP to this session and learn more about the Meet the Mesothelioma Experts series, visit curemeso.org/experts.
The Meso Foundation has released a new version of its web page about the Meet the Mesothelioma Experts live broadcast series, which makes the recordings of this educational series user-friendly and easier to access.
Each recording is now listed with a photo of the speaker, the title of the session, and a brief description of the topic of discussion. Users can select the recording they want to listen to, which will lead them to a user-friendly audio player accompanied by a more in-depth description of the session and speaker.
The Meet the Mesothelioma Experts series is a live teleconference with the goal of providing patients, their family members, and other interested parties with the most up-to-date information on mesothelioma treatment and research, directly from the physicians pioneering these advances. After the live teleconference, each session is available as a podcast for users to listen to on the Meso Foundation website. Past podcasts have featured:
Dr. Lee Krug, Memorial Sloan Kettering Cancer Center
Dr. Dan Sterman, University of Pennsylvania
Dr. Raffit Hassan, National Cancer Institute
Dr. Julie Brahmer, Johns Hopkins
Dr. Tobias Peikert, Mayo Clinic
Dr. Joseph Friedberg, University of Pennsylvania
Dr. Valerie Rusch, Memorial Sloan Kettering Cancer Center
Melissa Culligan, RN, University of Pennsylvania
Dr. Evan Alley, University of Pennsylvania
Dr. Joanna C. Horobin, Verastem, Inc.
The topics of past sessions have included immunotherapy, gene therapy, drugs, clinical trials, and biomarkers. Topics are discussed through an informal interview, focusing on questions important to patients in particular. Listeners are encouraged to ask questions while listening to the call.
To view the newly released web page and listen to past Meet the Mesothelioma Experts podcasts, visit curemeso.org/experts.
In the Sunday Times dated April 11th there were some very thought provoking responses to the article we posted last week regarding palliative care. I think this is an area of great interest to our patient population and I would like to continue the discussion. I read with great interest the responses from palliative care experts and I am convinced that so many of you would benefit from requesting that palliative care become part of your expert medical team. Fran Heller a much respected member of NY Presbyterian Hospital/Columbia University will be leading a group as well as meeting with patients and family members who would like expert advice. There will be many professionals from various disciplines on hand so please take advantage of their expertise.
As the time for the Symposium draws near we are all filled with a sense of excitement. We strive to build upon the momentum gained in prior years and hope that we meet the expectations of both new and seasoned Symposium attendees. This year we will have a new roundtable composed of patients and healthcare providers. In this session I hope that we can identify the strengths that allow those with mesothelioma to continue to lead full and rewarding lives. What does it take to get from the early days of diagnosis to becoming a whole and healthy person who also happens to carry the diagnosis of mesothelioma? Knowing that you have an incurable disease, do you hope for the best and prepare for the worst? Is that even possible? I hope to explore these questions with patients. I also wish to open a dialogue about what it takes to be on the other end of the exam table, as a provider, charged with delivering the news, and then providing hope with reality. It is a fine balance and the providers we have chosen to partake in this discussion are known for their compassion and honesty. I hope that by exploring the patient and provider experience we can come away with better communication skills and a better understanding of what it takes to fill either set of shoes.