New User-Friendly Meet the Mesothelioma Experts Web Page Released

Meet the Mesothelioma Experts Web PageThe Meso Foundation has released a new version of its web page about the Meet the Mesothelioma Experts live broadcast series, which makes the recordings of this educational series user-friendly and easier to access.

Each recording is now listed with a photo of the speaker, the title of the session, and a brief description of the topic of discussion. Users can select the recording they want to listen to, which will lead them to a user-friendly audio player accompanied by a more in-depth description of the session and speaker.

The Meet the Mesothelioma Experts series is a live teleconference with the goal of providing patients, their family members, and other interested parties with the most up-to-date information on mesothelioma treatment and research, directly from the physicians pioneering these advances. After the live teleconference, each session is available as a podcast for users to listen to on the Meso Foundation website. Past podcasts have featured:

  • Dr. Lee Krug, Memorial Sloan Kettering Cancer Center
  • Dr. Dan Sterman, University of Pennsylvania
  • Dr. Raffit Hassan, National Cancer Institute
  • Dr. Julie Brahmer, Johns Hopkins
  • Dr. Tobias Peikert, Mayo Clinic
  • Dr. Joseph Friedberg, University of Pennsylvania
  • Dr. Valerie Rusch, Memorial Sloan Kettering Cancer Center
  • Melissa Culligan, RN, University of Pennsylvania
  • Dr. Evan Alley, University of Pennsylvania
  • Dr. Joanna C. Horobin, Verastem, Inc.

The topics of past sessions have included immunotherapy, gene therapy, drugs, clinical trials, and biomarkers. Topics are discussed through an informal interview, focusing on questions important to patients in particular. Listeners are encouraged to ask questions while listening to the call.

To view the newly released web page and listen to past Meet the Mesothelioma Experts podcasts, visit curemeso.org/experts.

Follow-Up to NY Times’ article on Palliative Care

In the Sunday Times dated April 11th there were some very thought provoking responses to the article we posted last week regarding palliative care.  I think this is an area of great interest to our patient population and I would like to continue the discussion.  I read with great interest the responses from palliative care experts and I am convinced that so many of you would benefit from requesting that palliative care become part of your expert medical team.  Fran Heller a much respected member of NY Presbyterian Hospital/Columbia University will be leading a group as well as meeting with patients and family members who would like expert advice.  There will be many professionals from various disciplines on hand so please take advantage of their expertise.

Letters to the Editor, New York Times, April 10

If you haven’t read our previous blog, take a look here and also make sure to go through the comments sections.

Empowering the Mesothelioma Community

As the time for the Symposium draws near we are all filled with a sense of excitement.  We strive to build upon the momentum gained in prior years and hope that we meet the expectations of both new and seasoned Symposium attendees.  This year we will have a new roundtable composed of patients and healthcare providers.  In this session I hope that we can identify the strengths that allow those with mesothelioma to continue to lead full and rewarding lives.  What does it take to get from the early days of diagnosis to becoming a whole and healthy person who also happens to carry the diagnosis of mesothelioma?  Knowing that you have an incurable disease, do you hope for the best and prepare for the worst?  Is that even possible?  I hope to explore these questions with patients. I also wish to open a dialogue about what it takes to be on the other end of the exam table, as a provider, charged with delivering the news, and then providing hope with reality.  It is a fine balance and the providers we have chosen to partake in this discussion are known for their compassion and honesty.  I hope that by exploring the patient and provider experience we can come away with better communication skills and a better understanding of what it takes to fill either set of shoes.

Physicians’ decision-making style and psychosocial outcomes among cancer survivors. Arora NK, Weaver KE, Clayman ML, Oakley-Girvan I, Potosky AL. Patient Educ Couns. 2009 Dec;77(3):404-12. Epub 2009 Nov 4.

Patient-centered communication and prognosis discussions with cancer patients. Shields CG, Coker CJ, Poulsen SS, Doyle JM, Fiscella K, Epstein RM, Griggs JJ. Patient Educ Couns. 2009 Dec;77(3):437-42. Epub 2009 Oct 9.

Measuring therapeutic alliance between oncologists and patients with advanced cancer: the Human Connection Scale. Mack JW, Block SD, Nilsson M, Wright A, Trice E, Friedlander R, Paulk E, Prigerson HG. Cancer. 2009 Jul 15;115(14):3302-11

Which patients improve: characteristics increasing sensitivity to a supportive patient-practitioner relationship. Conboy LA, Macklin E, Kelley J, Kokkotou E, Lembo A, Kaptchuk T. Soc Sci Med. 2010 Feb;70(3):479-84. Epub 2009 Nov 10

Bereavement: addressing challenges faced by advanced cancer patients, their caregivers, and their physicians. Kutner JS, Kilbourn KM. Prim Care. 2009 Dec;36(4):825-44. Review.