The Work of the Meso Foundation is a Family Affair: Honoring Lotte

LotteLotte has done it all! She has stuffed envelopes, hand-written thank you notes, peeled hundreds (!) of potatoes, washed as many dishes, cared for mesothelioma patients who have stayed in her home, financially supported the Meso Foundation – all in the name of finding a cure for mesothelioma.

She is not a mesothelioma patient, and nobody in her family is a mesothelioma patient. She doesn’t have any friends with mesothelioma (other than the ones she met through the Foundation), and she may not have ever known about mesothelioma had Mary Hesdorffer (the Foundation’s executive director) not entered her life many years ago. Lotte is Mary’s mother-in-law.

To anyone who has ever worked in the non-profit sector, the notion of family members helping with events and performing office work is not foreign. At the Meso Foundation, too, our family members are as passionate as we are about this important cause and mission, so it’s not surprising that they often donate their time and effort to help us achieve our goals. We are immensely grateful to all of them.

During this past year, Lotte has had health setbacks of her own. Diagnosed with pancreatic cancer about a year ago, she has gone through surgery, a difficult recovery, radiation, chemotherapy, and recently, a recurrence.

A holocaust survivor and a breast cancer survivor, she has been an inspiration to all of us.

During this difficult time, we want Lotte to know that we are so very grateful for her and her contributions, and also simply for her presence.

Stay strong, dear friend!

Announcing the Winner of the 2015 Outstanding Nurse Award

Joanne RedondoWe are excited to announce that the 2015 recipient of the Meso Foundation’s June Breit and Jocelyn Farrar Outstanding Nurse Award is Joanne Redondo of the Hillman Cancer Center.

In January, we introduced our second annual campaign to choose a recipient of the June Breit and Jocelyn Farrar Outstanding Nurse Award. We began seeking a recipient through a nomination process. Meso Foundation community members submitted nominations for nurses who positively impact their lives. After receiving numerous nominations, five finalists were selected. We then let the community decide on the winner through a voting process. We provided short biographies and photos for each finalist and asked the community to vote for the nurse who they thought should receive the Outstanding Nurse Award. Nearly eight hundred votes later, we had our winner: Joanne Redondo.

Joanne Redondo began her career as a nurse 32 years ago when she graduated from Duquesne University in Pittsburgh, PA. She began her career at Presbyterian University Hospital, now known as UMPC Presbyterian Hospital. Her initial surgical career began with organ transplants, primarily liver, kidney, and pancreas. She worked for a team of transplant surgeons headed by Dr. Thomas Starzl, the pioneer of organ transplantation. Although Joanne loved the specialty, she decided to advance her career in the surgical Critical Care setting for the next 20 years. During that time, she took on several administrative roles, but her passion was always at the bedside providing direct patient care.

Joanne went back to graduate school in 2009 while working full time and teaching nursing students part-time at the university to help supplement her tuition. She graduated in May 2012 Summa Cum Laude from Duquesne University as a CRNP with a focus in Family Care. Joanne accepted a job working in the Surgical Oncology Division at the Hillman Cancer Center. Her specialty involved GI, liver, pancreas, melanoma, and mesothelioma type cancers.

While discussing her career in an interview, Joanne states, “As I embarked on a new chapter in my life, I did not realize how many families and lives I would affect on a daily basis. I have not only gained a new career, but I have gained endless new patients and families to love and care for.” Joanne works directly with mesothelioma patients. In discussing this, she states, “From my patients, although I continue to teach and support them about their own disease, I have in turn learned so much from them in regards to hope, perseverance, and living each day to the fullest.”

The June Breit and Jocelyn Farrar Outstanding Nurse Award will be presented at the Meso Foundation’s Awards Dinner on March 2, 2015 as part of the International Symposium on Malignant Mesothelioma at the Hyatt Regency Bethesda in Bethesda, Maryland. For more information about the event and to purchase tickets, visit

To learn more about the June Breit and Jocelyn Farrar Outstanding Nurse Award and the two courageous women for whom it is named, visit

Why the Foundation?

LogoBoxesRegisteredThe Meso Foundation realizes that there are numerous groups that you can affiliate with, provide your stories and attempt to raise awareness but it seems as if many are just going about this in the wrong way. To begin with, have you really looked into the Facebook pages or websites that you are supporting? Are they transparent in who they truly represent? Most often this is not the case.

The Foundation is your only 501(c)3 not-for-profit that is dedicated solely to finding a cure for mesothelioma. Our executive director and nurse practitioner, Mary Hesdorffer, is uniquely qualified to assist you in managing your disease and understanding all of the options that are available, be it a clinical trial or a more standard form of treatment. Mary spent years actively treating mesothelioma patients and writing clinical trials and papers that have been published in peer-reviewed journals. She understands the disease and brings a unique perspective to the Foundation both as a medical professional and patient advocate.

Patient advocate is a term that is widely used in mesothelioma, but who are these advocates? Who do they work for and what motivates them to advise you? Many nurses have been hired by legal entities but do you know that they have never worked in a mesothelioma clinic, and are trained in this disease by the law firm that surreptitiously pays their salary?

Hmmm… seems that we have some serious conflicts in this disease and it is about time that everyone takes a step back and thinks about what is truly best for the patient and the disease in general.

As the Meso Foundation is not a business model, we are not beholden to any institution or legal entity. We are independent and trustworthy which sets us apart from many of the “faces” you encounter on the web. Facebook is new to many of you and we ask that you think before you click the “Like” button, stop before you fill out an on-line form. Think. Where is your information going? Whose cause are you supporting?

You have more power than you realize and the capacity to effect change. We invite you to become more closely involved with the Meso Foundation, support our mission and assist us in getting unbiased information directly into the hands of those who are affected by this disease. We have a peer-reviewed research program where we provide grants which we hope one day will not only lead to more effective treatments but to a cure. We have testified before Congress multiple times. Through our direct advocacy efforts we have secured much needed federal funding for mesothelioma research. You can view this expert testimony here.

We invite you to visit our website, call us at 877-363-6376. If you’re on Facebook, please “Like” our Facebook page so you can receive the latest news about research, support, and advocacy. We are the real deal- we are your nonprofit and we need your support!

Follow-Up to NY Times’ article on Palliative Care

In the Sunday Times dated April 11th there were some very thought provoking responses to the article we posted last week regarding palliative care.  I think this is an area of great interest to our patient population and I would like to continue the discussion.  I read with great interest the responses from palliative care experts and I am convinced that so many of you would benefit from requesting that palliative care become part of your expert medical team.  Fran Heller a much respected member of NY Presbyterian Hospital/Columbia University will be leading a group as well as meeting with patients and family members who would like expert advice.  There will be many professionals from various disciplines on hand so please take advantage of their expertise.

Letters to the Editor, New York Times, April 10

If you haven’t read our previous blog, take a look here and also make sure to go through the comments sections.

Holidays and Stress

We are all in the midst of the holiday season and for those affected by mesothelioma this can be an extremely stressful time. I would like to urge those who are in need of support or just a good listener to call, I am in town for the holidays and readily available for a chat. If you would like I can facilitate an exchange of email address or phone numbers for a “buddy” to help you through the holiday. If you have lost touch with a member of the community this would be the perfect time to reach out and renew the relationship. You may find yourself running through a mix of emotions anger that your loved is no longer with you or even anger that they are not well enough to participate in the family traditions. Recognize that these emotions are normal and are part of the grieving process. If you do begin to feel that you can no longer cope reach out to a trained professional for assistance.

Expectations run high during the holidays and we have been trained to try and meet the families expectations less we disappoint someone. This year you might have to set some guidelines for yourself and make some general announcement as to how you can participate in the holiday festivities. Budgets can be particularly tight when you have an ill family member and it might be easier on the wallet and take considerably less time if limit gifts to the small children and if you’d like do a grab bag where you pick a name of one family member to buy for so everyone will have a gift under the tree. If dinner is too difficult you might consider a holiday brunch. If it is too much of a burden on any family member to host it you can consider meeting at a local breakfast place. If your loved one is too sick to attend, you might ask someone to give you some respite care for a few hours thus allowing you the time to be nourished by your loved ones.

For those that have lost loved ones some have told me that establishing new traditions made the day pass easier. Some volunteered at shelters and served dinner, others went to hospitals, nursing homes and some traveled to a far away place finding distance made it easier to fend off the holiday blues. If you have just lost your loved one and are physically and emotionally exhausted and have the means to do so, consider a spa where you can be pampered and begin to heal physically as stress takes a physical toll on all of us. If this is not within your budget, stay home and treat yourself to something special. You must give yourself permission to enjoy life and to heal and the holiday time can be the start of a new year and a new you. We also need to recognize that everyone in the family has been affected by this loss and are in different stages of grieving. A quiet call to discuss how best to handle the holidays can help to avoid misunderstanding or hurt feelings. Being alone is okay, just take some time to decide how much time is healthy for you to be alone. If you are able set a holiday table, prepare a simple meal, light some candles and cherish your memories they will always be with you.

~Mary Hesdorffer, NP

Click here to contact Mary Hesdorffer, Nurse Practitioner or call 877.363.6376