Gearing up for Mesothelioma Awareness Day

Paint the World in Mesothelioma AwarenessFor this year’s Mesothelioma Awareness Day on September 26, the Meso Foundation will focus its efforts on raising awareness of this aggressive cancer by leading a campaign titled “Painting the World in Mesothelioma Awareness.”

“We ask that everyone affected by this awful cancer, including mesothelioma patients and their families, those who have lost a loved one to this cancer, friends, neighbors, and acquaintances, wear blue t-shirts, and in general to make sure they keep blue as the central color of their themes as they raise awareness in person and virtually,” said Maja Belamaric, the Meso Foundation’s director of communications.

“The idea is to portray visually with the color blue the concept of awareness as it widens its reach,” she added.

Mesothelioma Awareness Day, established by Meso Foundation volunteers in 2004, has been the driving force behind the movement to bring more attention and funding to this cancer.

In the last ten years, through various activities, the Meso Foundation and its volunteers have been able to obtain “National Mesothelioma Awareness Day” proclamations for September 26 by both the U.S. Senate and the House of Representatives; have raised over a million dollars for research, education support and advocacy; have received local government proclamations in their states and localities, and have received dozens of instances of media coverage for their stories, events, and activities.

For more information about Mesothelioma Awareness Day and to stay up to date on events as September 26 approaches, visit curemeso.org/awareness.

 

Meso Warrior Heather Nash Makes Video to Raise Awareness

Heather NashThe Meso Foundation was recently featured in a video released by a mesothelioma warrior, Heather Nash, whose goal was to correct misconception about this deadly cancer and to request that viewers support the Meso Foundation.

In the video, Heather leafs through written cardboard sheets from which the viewer learns about her story. On them, she says, “My name is Heather. I am a daughter. I am a wife. I am a mom. I was a nurse. I was healthy. I have cancer. Mesothelioma. Average life expectancy: 9 to 18 months. I need your help to find a cure. Please give at curemeso.org.”

When asked about her reason for making the video, Heather explains that her goal was to show that the face of meso often isn’t the one seen on late night TV commercials.

“This cancer does not discriminate and I am an example of that,” says Heather.

“Also, being a relatively rare cancer, research into it gets little funding. I hope this video can help change that,” she added.

View the video below and visit curemeso.org/savelives to support the Meso Foundation’s life-saving programs and patient services.

Media Coverage Raises Mesothelioma Awareness

Mary HesdorfferOn Friday, September 26, the Meso Foundation and the mesothelioma community recognized Mesothelioma Awareness Day.

Among the many efforts to raise awareness on Friday, some took to the media to have their message broadcast to a wide audience.

We are listing here just two of those (if you obtained media coverage, please let us know so we can include it in our comprehensive list – email mbelamaric@curemeso.org)

As part of a Meso Awareness Day media tour, Mary Hesdorffer, the nurse practitioner and executive director of the Meso Foundation, served as an expert interviewee on nearly twenty television and radio stations. Mary spoke about mesothelioma and explained the role of clinical trials as part of a patient’s treatment. Below, we include one of the interviews that took place live on Friday morning.

 

Mesothelioma community members Yvonne Hall and Donna Bruszewski also took to the media, as they interviewed with WTVQ in Kentucky. Yvonne’s son lost his battle with mesothelioma at the age of 39. Donna lost her husband to the disease when he was 68-years-old. The pair used the media interview to tell people about mesothelioma, the risks involved, and what need to be done to stop it in the future. View the interview below.

Meso Foundation volunteers also gathered on Friday morning at Rockefeller Plaza in New York City to raise national awareness at the Today Show. View the video clip below of Al Roker speaking with Erica Iacono, a member of the Meso Foundation’s Board of Directors.

To learn more about mesothelioma and see how you can get involved, visit curemeso.org/answers.

Get Ready for Meso Awareness Day 2014

Mesothelioma Awareness Day 2014 will be observed on September 26th.Mesothelioma Awareness Day is just around the corner on September 26th! Established by Meso Foundation volunteers in 2004, Meso Awareness Day has been the driving force behind the movement to bring more attention and funding to this cancer. In the last ten years, through various activities, the Meso Foundation and its volunteers have been able to obtain “National Mesothelioma Awareness Day” proclamations by both the U. S. Senate and the House of Representatives, have raised nearly a million dollars, have received local government proclamations in their states and localities, and have received dozens of instances of media coverage for their stories, events, and activities.

In 2014, help us continue this trend. There are a number of ways that you can get involved, such as:

GOVERNMENT: Make Mesothelioma Awareness Day an official day in the states and cities where this hasn’t yet happened.

FUNDRAISING: Organize/attend a fundraising event. Visit curemeso.org to view upcoming events or explore the many ways you can get involved and plan your own event.

MEDIA COVERAGE: Contact your local media to obtain coverage of Meso Awareness Day in your area.

GENERAL AWARENESS: Use your social media networks to bring attention to mesothelioma and to educate your friends, families, and communities about our mission to eradicate mesothelioma and end the suffering caused by this cancer.

CONFERENCE: Join the Meso Foundation at the University of Pennsylvania in Philadelphia for a regional conference with experts in the field of mesothelioma. The conference will take place on Friday, September 26 at The Hub, Cira Centre located at 2929 Arch Street, Philadelphia, PA 19104.

TODAY SHOW: If you are in the New York are, join Meso Foundation volunteers as they again gather at Rockefeller Plaza in New York City for the Today Show on the morning of Friday, September 26. RSVP NOW. Check out the video below from Meso Awareness Day 2012!

More information about Mesothelioma Awareness Day is available on our website at curemeso.org/awarenessday.

Volunteers Needed: Meso Foundation’s Water Stop at NYC Marathon

The Meso Foundation will have an official water stop at the 2014 New York City Marathon and is looking for volunteers.This year, the Mesothelioma Applied Research Foundation has an opportunity to staff the water stop at Mile 19 of the New York City Marathon. This is an official water stop of the marathon and is a tremendous opportunity to raise awareness of our cause at such a world-famous event. This event features over 50,000 runners, and over 2 million spectators.

The marathon will take place on Sunday, November 2, and the volunteers are expected to be there between the hours of 7:30 AM – 3:30 PM.

Due to planning and security concerns, all interested volunteers must register online by September 30, 2014. No walk-ups are allowed.

If you are unable to volunteer, but still wish to participate in this event, you can give to the NYC Marathon water stop fundraising page curemeso.org/fundraising/nycmarathon.

The registration process outlined below requires several steps, so if you need help registering, please contact dpurcell@curemeso.org.

STEPS TO REGISTERING AS A VOLUNTEER FOR THE NYC MARATHON

If you are ready to VOLUNTEER for the 2014 TCS New York City Marathon, FOLLOW THE STEPS BELLOW:

1)    Follow the link https://mynyrr.nyrr.org/login and register with New York Road Runners (NYRR). 

If you need additional registration help, visit: http://www.nyrr.org/my-nyrr-getting-started

2)    Once you register, you will receive a confirmation email. Please follow the link in the email to finish setting up your account. (Can’t find the confirmation email? Check your spam folder!  Have Gmail?  Look in your promotions folder!

3)    Now, log in to your account and from the main page select VOLUNTEER, and select the area you’d like to volunteer in.

4)    Scroll to the volunteering event of your choice and select the radio dial to the left. Scroll down the page and click NEXT.

5)    Complete the missing information and click ACCEPT AND VOLUNTEER

Once you complete all the steps, you’ll receive a confirmation email from NYRR.

During the week leading up to the race, you’ll receive specific information about your assignment, and about what will happen on race day.