Have You Been Seeing Fewer Posts from the Meso Foundation in your Facebook Feed?

Meso Facebook LikeIn recent years, social media has become a valuable tool used to assist nonprofit organizations in raising awareness of their cause and programs. The Meso Foundation has been taking advantage of a number of platforms for this purpose, and is currently present on Facebook, Twitter, and YouTube. We use these social networks to connect with our community, provide news and information, promote upcoming events, fundraise, and simply to discuss mesothelioma and raise awareness of this cancer. We have found that Facebook, in particular, is an ideal social media tool for our purposes, and we have been using it extensively.

However, as a business, Facebook is focused on making money.  Recently, in an effort to do just that, Facebook engineers have made changes to the way posts are displayed on your news feed. Just a few months ago, those of you following our Facebook page would see our posts regularly. Now, however, Facebook shows our posts to only about 10% of you. The goal for Facebook is to increase the amount of money they make from organizations using paid advertisements. As a nonprofit organization, we don’t have the luxury of spending much money to promote information that should be accessible to you for free, and for this reason, we need your help!

In order to give our posts more visibility, Facebook wants to see first that our content is interesting. This is gauged by the number of likes, comments, and shares a post receives. So here’s how you can help out:

  • Interact with us! If you see a post that interests you, click “like” and leave us a comment.
  • If you think your own network of friends will like the post, share it.

Not only will this allow us to hear your thoughts and opinions, but it will give our content more play by telling Facebook that our posts should be released to more of our followers. The more you interact with our posts, the more people will see them.

To break it down, here’s an example: The Meso Foundation posts an article from our blog on Facebook, and it is seen by about 200 people. If each of those 200 people like, share, or comment on the post, it will be seen by the friends of each person! This gives our content a much larger reach, and in turn, gets the word out about mesothelioma.

Through social media, we are given the opportunity to directly connect with our community members. We want to hear your questions, comments, concerns, and thoughts on the content we post. Even if you have nothing to say, a simple like or share will go a long way in getting our content out there to more people. Through these efforts, we hope to raise mesothelioma awareness while building an online community dedicated to the mission of developing effective treatment and a cure for mesothelioma patients.

If you haven’t already, be sure to like the Meso Foundation on Facebook and follow us on Twitter.

Mesothelioma Mobilization in Britain

Mary and the Lord Mayor of Birmingham

Lord Mayor of Birmingham, Cllr Mike Leddy and Mary Hesdorffer, NP Executive Director of the Meso Foundation

by Laurie Kazan-Allen

The publication of an article entitled “Mesothelioma – The British Disease” in mid-June, 2013 set the tone for a summer of legislative, political, and public mobilization on asbestos. As groups representing asbestos victims lobbied politicians over the unfairness of provisions in the Mesothelioma Bill, members of the House of Lords tabled amendments to address the woeful lack of British funding for mesothelioma research. Lord Alton proposed that a levy be imposed on the insurance industry to fund medical research into mesothelioma; unfortunately, this amendment was defeated during a heated debate in the House of Lords. After the summer recess, the Bill will go to the House of Commons.

The importance of research funds and a coordinated research strategy were highlighted on July 3, 2013 in a presentation made by Mary Hesdorffer, NP Executive Director of the Mesothelioma Applied Research Foundation (Meso Foundation) to the Parliamentary Asbestos Sub-Group during its annual seminar in the House of Commons. Mary’s participation at this high-level Westminster event was warmly received as was the input by her colleague Dr. Daniel Sterman from the University of Pennsylvania Medical Center. Ms. Hesdorffer, NP and Dr. Sterman were the first American medical experts to take part in this event which has been a fixture of the Parliamentary calendar for well over a decade.

Commenting on her experience, Ms. Hesdorffer said:

“I was delighted to have this opportunity to discuss in Parliament the role of government as well as private sector funding in spurring innovative research to end the suffering caused by mesothelioma. All opportunities to collaborate and confer on the needs of those affected by mesothelioma are most welcome and in light of the increasing number of cases being diagnosed worldwide, we need to explore ways in which we can work more closely together on this global pandemic.”

By good luck and advanced planning, Mary and Dan were able to take part in Action Mesothelioma Day (AMD) events on July 5 in Birmingham and Liverpool. AMD is marked by asbestos victims groups, cancer charities, and civic officials throughout the country and has become a focal point for efforts to raise research funds and public awareness of mesothelioma, a disease killing more than 2,000 British citizens every year. It was a privilege to join Mary in Birmingham for the activities mounted by Asbestos Support West Midlands. The appeal for mesothelioma research funds by the Birmingham group raised £4,500!

Speaking about the day’s events, Doug Jewell, Coordinator of Asbestos Support West Midlands, commented:

“It seemed that Mary and Laurie brought the good weather with them when they came to Birmingham. After the 2012 storms, it was great to be able to be able to mark Action Mesothelioma Day under blue skies. The speakers’ input during the official segment of the program was much appreciated by our friends and colleagues, most of whose lives have been impacted by mesothelioma. There was a great deal of interest in Mary’s discussion of the clinical trials and new drugs being used in the US and UK with many people following up on information she presented in the days after the seminar.”

In the aftermath of AMD, work continues by mesothelioma sufferers and asbestos victims’ groups to raise awareness of a deadly epidemic that shows no signs of abating. Research means hope and it was a message of hope that Mary and Dan so ably transmitted during the time they spent with us in the UK.

About Laurie Kazan-Allen

Ms. Laurie Kazan-Allen has been researching, writing and campaigning on asbestos issues for more than twenty years. The British Asbestos Newsletter, the quarterly publication she founded in 1990, is widely regarded as one of the most authoritative contemporary sources of information by the UK community of asbestos activists. In collaboration with international colleagues, in 1999 she established The International Ban Asbestos Secretariat (IBAS). As the IBAS Coordinator she has organized and/or participated in asbestos events on six continents, amongst the most recent of which was an asbestos hearing at the European Parliament. 

As an adviser to the UK All Party Parliamentary Asbestos Sub-Group, Ms. Kazan-Allen helps organize the annual Parliamentary asbestos seminar. Kazan-Allen has written prolifically about asbestos issues in 85+ issues of the British Asbestos Newsletter and in IBAS publications such as Eternit and the Great Asbestos Trial, Report on the Asian Asbestos Conference 2009, India’s Asbestos Time Bomb and Killing the Future – Asbestos Use in Asia. These and other texts can be accessed at www.britishasbestosnewsletter.org and www.ibasecretariat.org

Meso Awareness Day

This year’s Meso Awareness Day is creating much needed meso awareness thanks to you, the meso community.  The Meso Foundation was fortunate to be invited to our City Hall to receive the proclamation of September 26th as Meso Awareness Day from our Mayor and City Council.  After the Mayor read the proclamation, Chris was permitted to say a few more words about the Foundation and why we are here.  He thanked our local government for joining with the meso community to raise awareness at home and how that information translates to awareness throughout the nation.

Sharing our stories and experiences helps educate the many mis-informed people about the dangers of asbestos and the necessity of commiting research funds to create better treatments and a cure for meso. Many of you have been effectively creative in your thoughts on  how to raise meso awareness.  I’ve joined multiple groups on social networks who are spreading the word to others about the disease.  In addition to many of you connecting to others online,  I’ve heard of  some of you making posters, t-shirts and buttons to observe and share our experience with meso; all of which are great ideas.

Many of us have asked our government to recognize mesothelioma on Meso Awareness Day by issuing its official proclamation on September 26th. The following is a list of some of the proclamations sent to the Foundation:

Pennsylvania- Yearly proclamation of recognition for September 26th as Meso Awareness Day by Governor Ed Rendell.  This has been issued annually since 2003.

Kentucky- Resolution proclaming Meso Awareness Day on September 26th by Governor Yvonne Hall.

Michigan- Resolution proclaming Meso Awareness Day on September 26th by Governor Wendy Martin.

Illinois- Executive Department proclamation for September 26th, 2008 as Meso Awareness Day issued by Governor Blagovich.

Georgia- Proclamation of Meso Awareness Day on September 26th issued by Governor Sonny Purdue.

Vermont- Proclamation of Meso Awareness Day on September 26th issued by Governor James H. Douglas.

Rockland County, New York- Meso Awareness Day Proclamation for September 26th from the Honorable Harriet D. Cornell.

Roselle Park, NJ- Declaring September 26th as Meso Awareness Day.

Santa Barbara, CA- Issued proclamation of Meso Awareness Day on September 26th, 2008 by Mayor Marty Blum

Please contact me if you would like to add to this list as well as for any other questions on how we can use our stories to educate our lawmakers and obtain the much needed attention and resources from our government.

Today, as we listen to Warren Zevon and sport our Meso Awareness gear we unite in the fight and pledge to continue our efforts throughout the year.

Thank you all for your hard work and hope!

Believing,
~Jeni