Meso Foundation’s Annual Report 2013 Released

Annual Report 2013The Meso Foundation recently released its 2013 Annual Report, featuring the organization’s audited financial information, as well as details about its 2013 programs.

According to the report, in 2013, the Meso Foundation spent 86 cents of every dollar on programs versus 14 cents on fundraising and administration.

“The Meso Foundation strives to keep costs to a minimum,” wrote the Foundation’s chief executive officer, Melinda Kotzian.

“As a result of the Foundation’s fiscal responsibility, we have been recognized as a four-star charity through Charity Navigator, named an accredited charity by the Better Business Bureau, and awarded the prestigious 2013 Top-Rated Award for GreatNonprofits,” Ms. Kotzian added.

The Meso Foundation is also listed through the National Cancer Institute as a mesothelioma support service organization, an honor attributed only to a select number of national nonprofit organizations that fit very strict criteria.

In addition to education, support services for patients and their families, and advocacy for increased federal funding of mesothelioma research, the Meso Foundation lists its total research funding at $8.7 million, which to date has yielded 180 articles published in 83 scientific journals.

The Mesothelioma Applied Research Foundation’s 2013 Annual Report is available at curemeso.org/annualreports.

RECAP: Meso Awareness Day

Mesothelioma Awareness Day 2013 was a major success. We had volunteers from across the country represent the Meso Foundation at the Today show in New York City, organize and participate in volunteer events, and join us for our New York Conference and Congressional Briefing. The community raised immense awareness and huge amounts of funds to support mesothelioma research. Below, we recap the successful events surrounding the day.

ROCKEFELLER PLAZA

Today Show Group

Bright and early on Mesothelioma Awareness Day, Meso Foundation staff and community members gathered at Rockefeller Plaza in New York City sporting “curemeso.org” t-shirts for the filming of the Today Show. The turnout was excellent and the group raised immense awareness for the disease and the Meso Foundation.  Rich Mosca had the opportunity to speak with Al Roker about mesothelioma and the Foundation. Another of our volunteers, Marina Mintz, received additional airtime after being chosen for an ambush makeover on the show.

CONGRESSIONAL BRIEFING

Dr. Alexander at Congressional Briefing

Later in the morning on September 26 the Meso Foundation held a congressional briefing at the Rayburn House Office Building on Capitol Hill in Washington, DC. Seventeen Congressional staffers attended the briefing, including some senior staffers. Moderated by Melinda Kotzian, Meso Foundation CEO, the briefing featured presentations from Dr. Rich Alexander, surgical oncologist and clinical research, as well as Lisa Gonneville, a mesothelioma patient. Dr. Alexander discussed the effects of mesothelioma on the body and the research behind the disease. Lisa shared the story of her diagnosis and battle with mesothelioma. Melinda provided insight into the need for research funding.

COMMUNITY DINNER

On the evening of September 26, Meso Foundation staff and volunteers again gathered in New York City for a community dinner at Ted’s Montana Grill. The dinner was hosted by Hanne Mintz, Meso Foundation Board of Directors member. This was a great time for the community to catch up and reflect on their great accomplishments of the day.

SOCIAL MEDIA CAMPAIGN

Mesothelioma Infographic

A social media campaign was launched in recognition of Mesothelioma Awareness Day. The Foundation posted a series of graphics on Facebook. The first of the series told the story of twin sisters, one of whom, Lindsay, was diagnosed with mesothelioma at the age of 20 and continues to battle the disease six years later. The second graphic told the story of Courtney, who lost her father to mesothelioma. The graphics encouraged Facebook viewers to share their story, emphasizing the fact that this disease affects countless individuals. On the morning of Meso Awareness Day, the Foundation launched an infographic explaining the disease and encouraging viewers to share the post to raise awareness. The graphic proved very successful, as it reached over 21,000 viewers on Facebook.

VOLUNTEER EVENTS

Kayaking 4 Meso

During the days and weeks surrounding September 26, twenty-two volunteer events were organized and held all over the nation to raise funds for the mesothelioma research. The events were held throughout many states, including New York, Florida, Ohio, West Virginia, Illinois, Pennsylvania, and so on. Thousands of attendees participated in raising mesothelioma awareness and funds. As donations are still coming in, proceeds from all of the events are being tallied. The total amount of proceeds will be reported in the coming weeks.

Many of our volunteer events were featured in media outlets. Check out the articles below:

RODs Benefit for Meso, an annual event in West Virginia organized by Missy Dorsey Bowles, raised over $25,000 for the Meso Foundation. This was a record-breaking amount for Missy. The event was featured in the following news outlets:

Yvonne Hall and Donna Bruzewski were interviewed by two media outlets in Lexington, Kentucky. Watch the videos listed here:

Evie Lichtenwalter, a college student, wrote the following article about her sudden mesothelioma diagnosis:

NEW YORK CONFERENCE

Dr. Lee Krug and Dr. Harvey Pass

On Friday, September 27th, the Meso Foundation brought together the New York region’s top mesothelioma experts for our annual conference, Malignant Mesothelioma: Knowledge is Hope, at the Harvard Club of New York City. Attendance sold out as patients, family members, doctors, and community members joined us for the conference. Topics discussed included mesothelioma surgery and chemotherapy, genetics of mesothelioma, the importance of biomarkers, radiation therapy, clinical trials, and asbestos exposure.

 


Be sure to read our two press releases detailing Meso Awareness Day activities and our Congressional Briefing:

Why Two Talking Heads are Better than One

By Mary, Hesdorffer, NP, Executive Director
Mesothelioma Applied Research Foundation

By now, many of you have seen the announcement that Melinda Kotzian has been promoted to CEO. Last week, following our very first announcement of this excellent news, I received a few quizzical emails expressing concern at the change in leadership of the Foundation.

I would like to set your minds at ease that this is not a change in leadership but recognition of a strong partnership that has been in place and continued to develop when I assumed the role of Executive Director.

I believe that to be a strong leader one must recognize their own strengths and weaknesses. I accepted this position with the caveat that Melinda would be my equal partner, utilizing her years of experience in the world of nonprofits, thus freeing me up to continue my work with the medical and mesothelioma communities.

Mary and Melinda working side by side during a recent meeting.

Mary and Melinda working side by side during a recent meeting.

Thanks to Melinda’s solid grasp of the business side of the Foundation, my role is now stronger than ever as I continue to focus on the medical and scientific areas of the organization, while simultaneously expanding our network of relationships. Melinda and I have been able to problem solve easily, both recognizing each other’s expertise, and have managed to reach consensus amicably and with both good humor and shared vision. We are more alike than different and I have felt very fortunate to have Melinda at my side. Her promotion was a recognition well deserved for her often behind-the-scenes expertise that is crucial to the future of the organization. I expect that you will continue to see changes at the Foundation in our staff and program levels but this is to keep the momentum going in addressing the growing needs of the organization. Please join me in congratulating Melinda on her promotion and sharing in our joint vision for the future of the Foundation.

PRESS RELEASE: Same Leaders, New Leadership Structure

FOR IMMEDIATE RELEASE
August 2, 2013
 
Contact:
Maja Belamaric
Phone: (703) 879-3822
mbelamaric@curemeso.org
www.curemeso.org 

Same Leaders, New Leadership Structure

The Meso Foundation has a new leadership structure. Mary Hesdorffer, NP and Melinda Kotzian have been sharing leadership responsibilities since August of 2012, with Ms. Hesdorffer focusing on research and science activities and Ms. Kotzian focusing on the business side of the organization.

Effective immediately, Melinda Kotzian, who has thus far been the Chief Operating Officer, will now serve as the Foundation’s first Chief Executive Officer. This change in title provides Ms. Kotzian with full authority to act as an officer of the Foundation. Despite this change in title, the actual leadership structure will not change. Ms. Hesdorffer and Ms. Kotzian will continue sharing executive duties as they have been for the past year.

“I’m thrilled that Melinda’s title is finally in sync with her responsibilities,” said Mary Hesdorffer, NP, Meso Foundation’s executive director. “She has been working hard on behalf of the Foundation and this change will help her do even more,” she added.

Melinda Kotzian has been with the Meso Foundation since 2010. Prior to working at the Meso Foundation, she was at the Naomi and Nehemiah Cohen Foundation , a small family foundation in the Washington, DC area which works on issues of social justice and helping those in need. Ms. Kotzian is a member of the Grants Management Network, Center for Nonprofit Advancement and the Nonprofit Professionals Network DC.

ABOUT THE MESOTHELIOMA APPLIED RESEARCH FOUNDATION
The Meso Foundation is the only 501(c)3 non-profit organization dedicated to eradicating mesothelioma and easing the suffering caused by it. The Meso Foundation actively seeks philanthropic support to fund peer-reviewed mesothelioma research; provide patient support services and education; and advocate Congress for increased federal funding for mesothelioma research. The Meso Foundation is the only non-government funder of peer reviewed scientific research to establish more effective treatments for mesothelioma and, ultimately, a cure for this rare, but extremely aggressive, cancer. To date, the Foundation has awarded over $8.2 million to research.

More information is available at www.curemeso.org.

###