mesothelioma advocacy rare diseases sequester

Mesothelioma and Other Rare Diseases: Forging Alliances to Make a Greater Impact

National Organization for Rare Diseases (NORD) and the Drug Information Association held their 2nd Annual Conference –  the US Conference on Rare Diseases and Orphan Products: Shaping the Future Now. The Meso Foundation was in attendance representing mesothelioma and the meso community.
Sessions focused on advocacy for inclusion of patients and community members in the research […]