FOR THE FOUNDATION: Missy Bowles, Fundraising Champion

Missy Bowles lost her father, Richard O. Dorsey, to mesothelioma cancer in the late summer of 2008; but for this tireless, driven individual, the loss of a loved one to this disease was merely the beginning. It was in 2009 that Missy’s Google search for “mesothelioma support” led her to the Mesothelioma Applied Research Foundation. At this point, she made an oath to do what she could to promote awareness and raise funds for important research into malignant mesothelioma. Three years later, Missy is continuing the fight and nurturing her belief in a cure. “The Foundation was able to direct me back then in my first steps of how to put a fundraiser together,” Missy recalls, “and from that point on it took off.”

As we have blogged previously about creativity in a fundraiser, Missy quickly realized that the only limitation in what she could do to bring to everyone’s attention the severity of mesothelioma was her own imagination and ingenuity. Her 5K Walk, she knew, needed to be something more, so she added to the event a charity gospel sing, raffles and a silent auction featuring local vendors, and food and fun for everyone in the family. West Virginia’s Putnam County has embraced this memorial event and is currently ramping up for the third year of ROD’s Benefit for Meso, happening this year on September 22. “This new tradition,” Mark Hailburn reports for PutnamLIVE.com, “is a hit while lending a helping hand. The event continues to get bigger, better, and brings more awareness to others.”

“Third time is the charm,” Missy states, “Each year we have raised around or a little over $15,000 for research, and this year I plan to top that, reaching a goal of $20,000. This September, Eleanor Town Park in Eleanor, WV will be hosting the event.” At this year’s event, some of the items being given away include Coach purses, Vera Bradley items, fishing gear, dinners, tans, and overnight stays at hotels and bed & breakfasts.

While ROD’s Benefit for Meso sounds like a lot of work (and it is!), Missy’s drive to promote mesothelioma awareness is not limited to just this yearly event. She now organizes a summer event called Smiles for Meso with professional photographer Amanda Crowder. This project is centered around Crowder’s studio offering portrait packages and sitting fees with part of the purchase going to mesothelioma research. But that’s not all.

On August 27, Missy will be teaming up with Buffalo Wild Wings in Nitro, WV for a 5-9 p.m. fundraiser where patrons (dine in or carry out) simply mention “mesothelioma” while placing their order. This will result in Buffalo Wild Wings graciously contributing 15% of that purchase towards the Meso Foundation. And if you think that’s enough for Missy and her summer, think again. All this is just a warm-up as Missy gets ready to work out for mesothelioma awareness and research.

“My first ever Zumbathon for Meso will be held on Sept. 21st in Eleanor Town Park the evening before the big run/walk event. “We will begin at 6pm with Zumba in the Park with my instructor, Katie Toney.” For those unaware, Zumba is a variety of cultural dances, ranging from salsa, merengue, and calypso, turned into a sweat-intensive, multicultural workout. “We will zumba for an hour and break for some items of raffle and then dance for another hour.” With each $15 registration, participants will each receive a tee-shirt and gift bag.

Once her summer events are over, Missy also collaborates with friends from local tanning salon Tanfastiq to create seasonal gifts that are auctioned off throughout the year to keep the need for mesothelioma research funds on everyone’s minds. “We always are blessed with the help and sponsorship of our local communities, and each year it continues to grow.”

And still, Missy is not done.

“I wanted the residents of West Virginia to understand and acknowledge mesothelioma by having a designated day for it,” she says. Last year, Missy contacted the Meso Foundation’s Government Liaison, Jessica Barker. “She provided a lot of guidance,” Missy recalls, “telling me with whom I should start talking.”  With Jessica’s help, Missy contacted House Representative Brady Paxton who was eager to meet with her and begin work on this incredible step forward for the state. She then found herself winning the support of Senator Mike Hall. Within one month of visiting the Capitol, Missy, her mother, and her son were invited to the State Capitol to watch the passage of the resolution for Mesothelioma Awareness Day to be recognized in the State of West Virginia.

With all this, Missy never loses perspective on her motivation. “I am proud of my efforts that my father’s life has pushed me to do, but this will never bring him back,” she states. “He was such and unselfish and giving man that, I know if he could, he would do all he could to help others that face this disease. So in his honor and because he cannot, I will keep fighting for him and for others. I am here to help, guide and give them advice about the next steps to take and whom to contact for help and support.”

From the Foundation, Missy, we thank you for everything you do.

Interested in hosting a fundraiser for the Meso Foundation? For more information on giving of your time and talents in your area and planning your own fundraiser, contact Jessica Barker at (703) 879-3819 or email her at jbarker@curemeso.org. You can also find out more information on being mentored our Fundraising Co-Chairs Shelly Kozicki and Erica Ruble by visiting our website at http://www.curemeso.org.

Meso Awareness Day

This year’s Meso Awareness Day is creating much needed meso awareness thanks to you, the meso community.  The Meso Foundation was fortunate to be invited to our City Hall to receive the proclamation of September 26th as Meso Awareness Day from our Mayor and City Council.  After the Mayor read the proclamation, Chris was permitted to say a few more words about the Foundation and why we are here.  He thanked our local government for joining with the meso community to raise awareness at home and how that information translates to awareness throughout the nation.

Sharing our stories and experiences helps educate the many mis-informed people about the dangers of asbestos and the necessity of commiting research funds to create better treatments and a cure for meso. Many of you have been effectively creative in your thoughts on  how to raise meso awareness.  I’ve joined multiple groups on social networks who are spreading the word to others about the disease.  In addition to many of you connecting to others online,  I’ve heard of  some of you making posters, t-shirts and buttons to observe and share our experience with meso; all of which are great ideas.

Many of us have asked our government to recognize mesothelioma on Meso Awareness Day by issuing its official proclamation on September 26th. The following is a list of some of the proclamations sent to the Foundation:

Pennsylvania- Yearly proclamation of recognition for September 26th as Meso Awareness Day by Governor Ed Rendell.  This has been issued annually since 2003.

Kentucky- Resolution proclaming Meso Awareness Day on September 26th by Governor Yvonne Hall.

Michigan- Resolution proclaming Meso Awareness Day on September 26th by Governor Wendy Martin.

Illinois- Executive Department proclamation for September 26th, 2008 as Meso Awareness Day issued by Governor Blagovich.

Georgia- Proclamation of Meso Awareness Day on September 26th issued by Governor Sonny Purdue.

Vermont- Proclamation of Meso Awareness Day on September 26th issued by Governor James H. Douglas.

Rockland County, New York- Meso Awareness Day Proclamation for September 26th from the Honorable Harriet D. Cornell.

Roselle Park, NJ- Declaring September 26th as Meso Awareness Day.

Santa Barbara, CA- Issued proclamation of Meso Awareness Day on September 26th, 2008 by Mayor Marty Blum

Please contact me if you would like to add to this list as well as for any other questions on how we can use our stories to educate our lawmakers and obtain the much needed attention and resources from our government.

Today, as we listen to Warren Zevon and sport our Meso Awareness gear we unite in the fight and pledge to continue our efforts throughout the year.

Thank you all for your hard work and hope!

Believing,
~Jeni