THE TOP 10 REASONS TO GO TO THE MESO FOUNDATION’S 2013 SYMPOSIUM ON MALIGNANT MESOTHELIOMA

bonnie_aMesothelioma – by now you all know how to pronounce it, and you know that being informed is important. You also know about the Mesothelioma Applied Research Foundation or you wouldn’t be reading this blog. But did you know just how amazing their symposia are?

Let me give you an example of just a few highlights that I’ve seen:

1. People hugging people just because they have this disease in common and needed a hug.
2. Meeting a man in the hotel elevator who had a meso name badge, speaking to him and finding out he is Dr. Harvey Pass, the guru of mesothelioma. (We have since had many conversations together.)
3. Hearing the top meso specialists in the world speak about treatment, hope and the future of research.
4. Meeting a researcher who knew who I was because he works on my slides in research.
5. Letting researchers know how important their work is to patients and families.
6. Giving hope to a young mother who came because she had no idea where to turn to and didn’t know what to do next.
7. Putting a face to a name for those who have and will need support.
8. Knowing you are really not alone and there are others who can help.
9. Running out the door, to grab a hold of a doctor who just gave his speech and have him listen and talk to you on a personal level to answer your questions.
10. To meet other caregivers, patients and families affected by mesothelioma.
11. To be able to sit at a table with researchers and doctors and see that they are touched to know patients and families out of a clinical setting.
12. And finally… to meet Mary Hesdorffer, the woman who has helped save so many of us.

Ok so I lied. Not 10, but so many more reasons for you to attend the Symposium. I guarantee you will be so glad you did.

By Bonnie Anderson

Hope in the Big Apple: The Meso Foundation’s “Knowledge Is Hope” Conference

It doesn’t seem that long ago that we were all in Washington D.C., coming together for the 2012 Symposium. After such a successful and inspirational event, what does the Meso Foundation plan for next?

How about a one-day event on the week of Mesothelioma Awareness Day? That is exactly what we plan!

On September 28, 2012, on the heels of Mesothelioma Awareness Day, the Meso Foundation (with a generous educational grant from Levy Phillips & Konigsberg, LLP) will proudly present “Malignant Mesothelioma: Knowledge Is Hope.” This is a one-day conference in New York City, NY, focusing on patients, families, doctors, and anyone wanting to understand more about malignant mesothelioma. It’s a jam-packed day-long agenda includes:

  • A return to the Plaza for raising awareness during the Today show
  • Sessions on standard treatments, ongoing research, complementary therapy, environmental/occupational exposure risk, and legal implications
  • Morning presentations featuring Lee Krug, MD; Marc Ladanyi, MD; Harvey Pass, MD; Kenneth Rosenzweig, MD followed by a questions and answers panel
  • Afternoon presentations by Garrett Nash, MD; Robert Taub, MD; Mary Hesdorffer, NP; Kathleen Wesa, MD; Jacqueline Moline, MD; and Robert Komitor, Esq.
  • Musical entertainment by Leon Pendarvis, musical director of Saturday Night Live
  • …and much more.

“Knowledge Is Hope” brings top experts in mesothelioma from the New York area to the Harvard Club of New York City, located on 35 West 44th Street, New York, for a day of education and awareness. This event promises to be a day of information, a day of science and research, and a day of discussions over the recent advances in mesothelioma treatment.

Registration is $25 per person (includes all sessions, breakfast and lunch). Register by clicking here or by calling the Meso Foundation at (703) 879-3797. Registration fees will be donated back to the Meso Foundation. Availability is limited. You must register before our deadline of September 10.

Knowledge is hope. Join us for this incredible day in New York City.

A Social Media Moment: Knowing Boundaries

Our nurse-practitioner-of-infinite-awesome, Mary Hesdorffer, brought to my attention that on our Facebook page there has been more and more activity appearing, people ranging from mesothelioma survivors to those surviving loved ones lost. She mentioned to me that she got an impression from some new to Facebook that they were not sure what is appropriate and inappropriate to share on the Facebook platform. For many of our users, the visit to our online group or fan page is their first foray into the social network. Where do you begin to figure out the rules of engagement, as it were?

Well, your answer really is in what Facebook is all about, isn’t it? Facebook is a social network, so it’s all about being social. While completing your profile (which I suggest you do because the more complete profile, the easier it is to connect and interact with people) is important, it can be a bit daunting, especially if you classify yourself as a private person. The thing to keep in mind with Facebook is it is very much like any social interaction: you have boundaries, just as others do, and you must respect them.

This may sound funny, particularly from the guy who just last week was telling you to “Share! Share! Share!” Trust me — there is a method to my madness. Continue reading “A Social Media Moment: Knowing Boundaries” »