PRESS RELEASE: Same Leaders, New Leadership Structure

FOR IMMEDIATE RELEASE
August 2, 2013
 
Contact:
Maja Belamaric
Phone: (703) 879-3822
mbelamaric@curemeso.org
www.curemeso.org 

Same Leaders, New Leadership Structure

The Meso Foundation has a new leadership structure. Mary Hesdorffer, NP and Melinda Kotzian have been sharing leadership responsibilities since August of 2012, with Ms. Hesdorffer focusing on research and science activities and Ms. Kotzian focusing on the business side of the organization.

Effective immediately, Melinda Kotzian, who has thus far been the Chief Operating Officer, will now serve as the Foundation’s first Chief Executive Officer. This change in title provides Ms. Kotzian with full authority to act as an officer of the Foundation. Despite this change in title, the actual leadership structure will not change. Ms. Hesdorffer and Ms. Kotzian will continue sharing executive duties as they have been for the past year.

“I’m thrilled that Melinda’s title is finally in sync with her responsibilities,” said Mary Hesdorffer, NP, Meso Foundation’s executive director. “She has been working hard on behalf of the Foundation and this change will help her do even more,” she added.

Melinda Kotzian has been with the Meso Foundation since 2010. Prior to working at the Meso Foundation, she was at the Naomi and Nehemiah Cohen Foundation , a small family foundation in the Washington, DC area which works on issues of social justice and helping those in need. Ms. Kotzian is a member of the Grants Management Network, Center for Nonprofit Advancement and the Nonprofit Professionals Network DC.

ABOUT THE MESOTHELIOMA APPLIED RESEARCH FOUNDATION
The Meso Foundation is the only 501(c)3 non-profit organization dedicated to eradicating mesothelioma and easing the suffering caused by it. The Meso Foundation actively seeks philanthropic support to fund peer-reviewed mesothelioma research; provide patient support services and education; and advocate Congress for increased federal funding for mesothelioma research. The Meso Foundation is the only non-government funder of peer reviewed scientific research to establish more effective treatments for mesothelioma and, ultimately, a cure for this rare, but extremely aggressive, cancer. To date, the Foundation has awarded over $8.2 million to research.

More information is available at www.curemeso.org.

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Meso Foundation’s New CEO

MelindaThe Meso Foundation has a new CEO! Melinda Kotzian, who has thus far been the Chief Operating Officer, will now serve as the Foundation’s first Chief Executive Officer. This change in title provides Melinda with authority to fully perform all operational, administrative and executive duties.

Mary Hesdorffer, Nurse Practitioner, remains the organization’s Executive Director, and together she and Melinda share the leadership tasks of the Meso Foundation.

Donating to the Meso Foundation through the Combined Federal Campaign (CFC)

CFC_RGBIf you are a federal employee (including military personnel), you are eligible to participate in the Combined Federal Campaign’s (CFC) fundraising drive. The CFC allows federal employees to make tax-deductible donations to their charity of choice directly through payroll deductions.

The Mesothelioma Applied Research Foundation is eligible to receive your donations. In order to ensure that your donation is allocated to the Meso Foundation, please mark our CFC number in your forms:

Mesothelioma Applied Research Foundation’s CFC Number: 11856

Mesothelioma is a disease that strikes approximately 3,500 Americans per year, and that disproportionately affects military personnel. In fact, it is estimated that 30% of all mesothelioma patients served in the US Navy or worked in shipyards.

According to Wikipedia:

“the CFC is the largest workplace charity campaign in the United States and the only campaign authorized to solicit and collect contributions from federal employees in the workplace on behalf of charitable organizations. As the world’s largest and most successful annual workplace giving campaign, each year, more than 350 CFC campaigns throughout the United States and internationally help to raise millions of dollars. Nearly four million federal employees and military personnel are able to contribute to the charities of their choice during the annual charity drive, which runs from September 1 through December 15 of each year. Pledges made by Federal civilian, postal, and military donors during the campaign season support eligible non-profit organizations that provide health and human service benefits throughout the world. These contributions can be made either by cash or check, or can be automatically deducted from these employee’s paychecks.”

Review: Report on Mesothelioma

mapby Mary Hesdorffer, Nurse Practitioner
Executive Director, Mesothelioma Applied Research Foundation

Researchers from Creighton University School of Medicine accessed the National Cancer Database (NCD), and issued a report on their findings. They analyzed the years between 2000 and 2010. In the United States, 26,605 patients were diagnosed during this period of time. The NCD accumulates this data on approximately 70% of all cancers diagnosed in the states. If one were to add in the 30% not recorded it would take us close to the number of 3,458 cases per year that we use as a figure when we present on mesothelioma.  This supports that the numbers of diagnosed mesothelioma patients have remained fairly steady over these past years.

Not surprising were the reports that mesothelioma patients were 89% Caucasian, 78% male and 60% over the age of 70. We talk about the changing face of mesothelioma, but perhaps that perception is created because younger patients access the web, engage in social media and are able to draw more attention to their plight. Or perhaps one could argue that when 30% remain unaccounted for in this database the figures could be different in terms of age, race and gender.

Recently, I took the opportunity to speak with Dr. Karen Antman, Dean of Boston University School of Medicine, to discuss the earliest days of mesothelioma research. Dr. Antman, prior to writing one of the first clinical trials in mesothelioma, canvased the database of the Harvard system and told me that even then she was surprised by the number of young patients she found in the archives. So perhaps this phenomenon is not new.

What does not surprise me is that 36% of patients under the age of 50 underwent surgery, and 12% over the age of 80 also underwent a surgical procedure. It takes a good physicality to undergo this surgery and return to a quality of life that is sustainable and acceptable to the majority of patients.

In reading the report, what did not surprise but disgusted me, was that insurance weighed so heavily in the surgical arena. “Patients with private insurance received more surgical treatment (28%) than patients with Medicaid (22%), Medicare (18%), and VHA (12%)(p<0.009)” (J Clin Oncol 31, 2013 (suppl; abstr e18501). Our Veterans seem to be denied surgery when compared to those with private insurance.  21% of all patients in this database underwent surgery which explains why attempting to mount a robust surgical trial in mesothelioma will not be possible and we will continue to rely on case series and small powered trials to obtain surgical statistics in advising our patients.

Want to learn more about mesothelioma research? Ask one of our experts.

Facebook Exhaustion?

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There are days when all of us wonder what we are doing online so much of our day. Are you feeling vulnerable when reading stories of others who might not be doing well or fearfully comparing your stories to that of others? This is one of the drawbacks of joining an online community. You take the good with the bad and the ugly. So how can you protect yourself on Facebook?

If you are in feeling sad or anxious, perhaps choosing not to log in or only logging in to read your private message may be a good strategy. Or you might consider a Facebook break, and give the groups time to cool down and then jump back in when you are feeling stronger and wish to reconnect with others who are affected by mesothelioma.

There are many who feel the need to share, share and share again, and others who wish to maintain their privacy and participate on a limited basis. Some friend everyone in sight and then get bombarded with messages and feeds, while others judiciously join in and make friends slowly and carefully. Friends can be fleeting on Facebook. You do have the option to “unfriend” someone whose posts are particularly disturbing to you and perhaps send them a simple note as to why you might be unfriending them.

The Foundation is sensitive to the needs of those in the community and wishes to make the Facebook support group experience one that provides accurate information, support and the ability to connect with others.  We will never exploit those in our community and respect your privacy and emotional well-being.  Please contact any staff members with suggestions, comments, or even criticism. That is how we learn how best to care for our community.