Articles by EllieBloomer

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My Cancer Birthday

BY JOHN PANZA
I am 42 years old. And I have malignant pleural mesothelioma. I am told I am Stage 3. Although I have probably survived with this disease for five years or so, I am officially three years out from awareness of the disease. I have a wife, one child, four cats, two cars, and […]

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Recapping the US Conference on Rare Diseases and Orphan Products

by Beth Posocco, Communications Associate, Mesothelioma Applied Research Foundation
A few weeks ago, I had the chance to attend two days of the third annual US Conference on Rare Diseases and Orphan Products in Bethesda, Maryland. The conference organized by NORD and DIA was broken up into four major themes: Research and Regulation, Access and Reimbursement, […]

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