Today, February 28th is Rare Disease Day. Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year. In the United States, any disease affecting fewer than 200,000 people is considered rare. Mesothelioma is […]
The Meso Foundation realizes that there are numerous groups that you can affiliate with, provide your stories and attempt to raise awareness but it seems as if many are just going about this in the wrong way. To begin with, have you really looked into the Facebook pages or websites that you are supporting? Are […]
Mesothelioma – by now you all know how to pronounce it, and you know that being informed is important. You also know about the Mesothelioma Applied Research Foundation or you wouldn’t be reading this blog. But did you know just how amazing their symposia are?
Let me give you an example of just a few highlights […]
Five years ago when my dad said, “I have mesothelioma,” I sat in disbelief. What was this disease? I could barely even pronounce it. What did this mean, for my dad, for me, for our family? A flood of emotions ran through me and the panic set in as I read about this orphan disease […]