2013 Symposium, Las Vegas, NV – SAVE THE DATE

LivestreamBannerWebsiteIf you haven’t already marked your calendar, please make sure you do so! The 2013 Symposium covering malignant mesothelioma will take place on:

March 7 – 8
Aria Resort and Casino
Las Vegas, NV
The Mesothelioma Applied Research Foundation’s Symposium is a two day conference for the entire mesothelioma community, including patients, families, those who have lost loved ones, medical experts, researchers and advocates.

Topics covered during the 2013 Symposium will focus on current mesothelioma treatments, recent advances, ongoing research, support group breakouts and workshops, and other psych-social discussions of interest to mesothelioma patients. Not only is the Symposium a great place to learn about mesothelioma from top experts in the field, but it also offers many opportunities to meet others interested in finding a cure.

You can find photos and videos of the last several Symposia on our website at curemeso.org/symposium. Here is one video from the 2012 conference:

And if you missed the 2012 conference, take a look at this blog we wrote covering it.

For more information, please contact our office at (703) 879-3797.

Miles for Meso 5K Run / 2K Walk – Alton, IL

On Saturday, September 22, Midwestern runners and walkers rejoice! The fourth annual -_Meso5K_0032-311Miles for Meso in Alton, IL is back again this year!  Experienced and less experienced runners (and walkers) are all invited to spread their gait and get together for a morning of endorphins, community, awareness and fundraising.

This 5K run and 2K walk, sponsored by the Simmons Firm starts at 8:30 AM at the Simmons Firm building, across from Marquette Catholic High School (One Court Street Alton, IL).

Registration is now open (you can register here) and will remain open until September 18, 2012 at midnight. The cost to register is $20 until Aug. 31, $25 until Sept. 18, and $30 on race day, and includes a running-shirt and post-race activities. All proceeds benefit the Mesothelioma Applied Research Foundation.

More information about the event is available at www.milesformeso.com.

FOR THE FOUNDATION: Charlie Cole Classic

banner--cole-classicLynn Cole lost her husband, Charlie, to mesothelioma just a few years ago at the age of 51.  While grieving her loss, she felt the need to be proactive and do something to help others facing mesothelioma.  “Charlie’s love of golf and the mountains” inspired Lynn and her children Matt and Katie to host the first Charlie Cole Classic golf tournament in 2011 and “become advocates for the Foundation which helped us.”  Lynn is committed to continue helping those facing mesothelioma by raising funds to support medical research.

Launched in 2011, the Charlie Cole Classic is an annual golf outing nestled in the majestic Blue Ridge Mountains of western North Carolina.   The tournament, held in the scenic mountain setting of the High Vista Country Club, will be Captain’s Choice format, with a Shotgun start and four player teams.  A Dinner will follow the award ceremonies.  “Family, friends and associates all gather to share fun, fellowship, and honor Charlie while raising awareness and money for the Mesothelioma Applied Research Foundation,” says organizer Lynn Cole.  Lynn says she could not have done it without all of the help of her children, Matt and Katie.

When asked about her expectations for the tournament, she answers “We hope to continue to grow this event, raise awareness and demonstrate to others that we can all make a difference in the fight against mesothelioma,” continues Cole “And anything but rain!”

For registration, schedule of events, and sponsorship opportunities email: charliecoleclassic@gmail.com

To learn more about the High Vista Country Club: http://www.highvistagolf.com

Interested in hosting a fundraiser for the Meso Foundation? For more information on giving your time  to plan your own fundraiser, contact Sean Haynie at (703) 879-3823 or email him at shaynie@curemeso.org. You can also find out more information on being mentored by our Fundraising Co-Chairs Shelly Kozicki and Erica Ruble by visiting our website at http://www.curemeso.org.

 

 

FOR THE FOUNDATION: Bruce A. Waite Miles for Meso 5K

Bruce RunningJill Waite contacted the Meso Foundation earlier this year in hopes of planning her first fundraiser to honor her late father, Bruce Waite, who died from mesothelioma.

Bruce Waite on one of his daily runs.

Nearly ten years after his death, Jill has organized the first Bruce A. Waite Miles for Meso 5K in Ontario, OH on Sunday, September 23, just 3 days before Mesothelioma Awareness Day.  Bruce was a teacher with over thirty years of service to his students, and Jill has been overwhelmed by the outpouring of support that has come from her father’s former students, friends and family from all over the country.  She has learned even more about her dad and his legacy from the stories she has heard from the people coming out of the woodwork.

“One student told me Dad made the difference between prison and college for him.  One student wrote me that Dad sent him a congratulatory note as he graduated from college.   Every day, I end up in tears, not even from sadness, but from pride.  And to this man who had so much humility that he truly felt he had no impact, I look up to the sky and tell him this is the only time he was wrong,” says Jill.

Jill chose to organize a 5K in honor of her father because running was also a huge part of his life, never missing one of his daily runs for 33 years. She knew that 2012 was the year, stating “as I turned 50, I realized that I did not want to celebrate without Dad – so I decided it is the perfect year to have the Bruce A. Waite Miles for Meso 5K Run/Walk.”

This is not the Waite family’s first fundraising effort in honor of Bruce, in fact they have established a scholarship fund for graduating high school seniors interested in pursuing a career in education. One of the scholarship recipients will begin teaching this fall, and will be teaching some of the same literature Bruce taught.

Jill is committed to continuing to raise funds to support mesothelioma research, saying “If part of Dad’s legacy is to help raise monies for meso research so other families can be spared what we endured, then, as his daughter, I have no choice but to continue the fight.  I count it an honor.”

To find out more about the Bruce A. Waite Miles for Meso 5K, visit their website: www.brucewaite5k.com

Interested in hosting a fundraiser for the Meso Foundation? For more information on giving of your time and talents in your area and planning your own fundraiser, contact Sean Haynie at (703) 879-3823 or email him at shaynie@curemeso.org.  You can also find out more information on being mentored by our Fundraising Co-Chairs Shelly Kozicki and Erica Ruble by visiting our website at http://www.curemeso.org.

What is a Sequester and What Does it Mean for the Meso Community?

The Budget Control Act of 2011 (P.L. 112-25) established caps on federal discretionary spending over 10 years, resulting in $1 trillion in cuts spread across defense and nondefense discretionary (NDD) programs. The law also directed a congressional Joint Select Committee on Deficit Reduction to identify an additional $1.2 trillion in budgetary savings over ten years. The failure of the bi-partisan “super committee” to come to an agreement on a deficit reduction plan triggered a “sequester” to take effect on January 2, 2013.

To sequester means to set apart or to take something away until a debt has been repaid. In the context of funding federal programs, sequester means imminent, across-the-board cuts to most programs, both defense and nondefense—in addition to the $1 trillion in cuts already sustained through the Budget Control Act’s discretionary caps.

Unfortunately, the federal agencies will have no say in what gets cut, they will be strictly across the board.  Each program will have the same cut of 7.8 percent, which they will not be able to save soley in administrative costs, programs will be cut.  This will have dire consequences for agencies such as the National Institutes of Health (NIH) and the Department of Defense (DOD), both of which fund mesothelioma research.

A sequester would have a devastating effect on medical research, as a 7.8 percent cut to the National Institutes of Health(NIH) would result in fewer medical research grants being granted.  In 2012, the NIH funded 23 grants to mesothelioma research.  Theoretically, a 7.8 percent cut would mean 2 less grants would be made to mesothelioma research in 2013.   These cuts will stifle medical discoveries that lead to better treatments and ultimately a cure for mesothelioma.

Sequestration can be avoided if Congress passes a deficit reduction proposal that is acceptable to the administration by January 2013. The administration has stated repeatedly that it will not accept a plan that only depends on spending cuts and has requested that Congress pass a balanced deficit reduction plan that also increases revenue through tax reform.

The Meso Foundation will be closely following this issue, please stay tuned for updates and opportunities to take action.